Abide. That was our plan. Medical stuff was going to go on pause for the Christmas season and we would face the future in the new year. We would wait patiently for what would come. We would hold tight. We would abide. Health care professionals that we are blessed with, didn't wait. On Dec 21 oncologists that reviewed my file saw a concerning relapse-- more than 40 hot spots in my bone marrow. Mysteriously, that level of activity had not been betrayed by the protein markers in my blood. It was clear to them that a new treatment protocol would be needed as soon as possible but could not be found in a current clinical trial precisely because of the unusual nature of the relapse. With no viable trial on the horizon I was referred to the Tom Baker Cancer Centre in Calgary. A doctor there has compassionate access to an approved but unfunded newer drug known as a "bispecific." We will be doing a consult on January 8 and will make decisions after that. Now... again...we need to...
Brian’s diagnosis of Multiple Myeloma was in May 2018. The initial treatment was a stem cell transplant. After 30 months there was a relapse, followed by chemo, another relapse, new chemo and yet another relapse. In January 2024, the 4th treatment began. Brian currently gets weekly injections of an immunotherapy drug. Sometimes we keep the faith and sometimes we need family and friends around us to keep the faith for us. This blog is about enabling us all to be kept in the faith.